St Mary's Centre
River Trip: leaving HVH at 9.30am
By Haddenham Webteam - 7th October 2018 1:45pm
On Saturday 3rd November, SkaSouls UK will be presenting a benefit gig, raising funds for the Finley Newell Mobility & Equipment Fund, towards ongoing equipment and therapies.
SkaSouls UK are 7-piece ska, reggae & 2-tone band playing original material & covers of Madness, The Specials, Bad Manners and Trojan Reggae.
From 7.30pm til midnight at the Rivets Sports & Social Club, Whitehead Way, Aylesbury HP21 8AD
The event includes a licensed bar and a raffle.
Admission by ticket only — £10. Available online at www.cuddingtonvillage.com/view-page.php?pid=127
For further Info: Liz Davies, telephone 01844 299 150
Finley's Dad, Joel, plays saxophone with the Ska Souls
Finley has Spinal Muscular Atrophy (SMA) Type 2
SMA is a rare degenerative neuromuscular condition which leaves Finley unable to sit or stand without support. He cannot walk, his arms, hand, head and neck movement and breathing are affected and he is unable to swallow.
But for all this, he is a bright and happy 5yr old with a huge zest for life, and drives himself to mainstream school in his powered wheelchair.
He and his family live in Haddenham and try to live as normally as possible, but this cannot be done without specialised equipment and therapies beyond the realms of the NHS. All proceeds from the Ska Souls gig will go towards ongoing equipment and therapies.
Says Liz Davies, Finley's grandmother: "A big thank you to everyone, not least to the wonderful SkaSouls and The Rivets Sports & Social Club."
For more information about Finley and Spinal Muscular Atrophy please see www.facebook.com/pages/The-Finley-Newell-Mobility-and-Equipment-Fund/823618127719947?ref=hl
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